FAIR Data Point - Mapi Research Trust

ePROVIDE™ Platform - Clinical Outcome Assessments

FAIR Data

ePROVIDE™ - Available COAs

🧾 Catalog Metadata

Identifier: proqolid
Publisher: Mapi Research Trust
Language: en
Access Rights: restricted
License: scientific use only

📦 Available data

PKDD - Pyruvate Kinase Deficiency Diary
PKDIA - Pyruvate Kinase Deficiency Impact Assessment
PKU-POMS - Profile of Mood States - Phenylketonuria
Planning Star - Planning Star
PLATO-11 - Patient-reported Longitudinal Assessment Tool for OSA – 11-Items
PLC - Quality of Life Profile for the Chronically Ill
PLD-Q - Polycystic Liver Disease Questionnaire
PLE Test - Passive Lumbar Extension Test
Plexiform Neurofibroma Pain Impact in Children & Adults - Plexiform Neurofibroma Pain Impact in Children & Adults
PlexiQoL - Plexiform neurofibromas Quality of Life measure
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💾 RDF metadata for machines

Download in rdf+xml format