FAIR Data Point - Mapi Research Trust

ePROVIDE™ Platform - Clinical Outcome Assessments

FAIR Data

ePROVIDE™ - Available COAs

🧾 Catalog Metadata

Identifier: proqolid
Publisher: Mapi Research Trust
Language: en
Access Rights: restricted
License: scientific use only

📦 Available data

FOIS - Functional Oral Intake Scale
Follow-up version - AIRQ® - Follow-up version - Asthma Impairment and Risk Questionnaire®
Food AVERSE Questionnaire - Food AVERSE Questionnaire
FOP-PFQ (Self 15+ Years) - Fibrodysplasia Ossificans Progressiva Physical Function Questionnaire - Self-completed for Ages 15 Years and Older (Adult Version)
FOP-PFQ-P (Proxy 2-4 Years) - Pediatric Fibrodysplasia Ossificans Progressiva Physical Function Questionnaire - Proxy-Completed for Ages 2 to 4
FOP-PFQ-P (Proxy 5-14 Years) - Pediatric Fibrodysplasia Ossificans Progressiva Physical Function Questionnaire - Proxy-Completed for Ages 5 to 14
FOP-PFQ-P (Self 8-14 Years) - Pediatric Fibrodysplasia Ossificans Progressiva Physical Function Questionnaire - Self-Completed for Ages 8 to 14
FOP-PROMPT - Fibrodysplasia Ossificans Progressiva-foP RepOrted syMPtoms Tool
FoP-Q - Fear of Progression Questionnaire
FoP-Q-SF - Fear of Progression Questionnaire Short Form
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