FAIR Data Point - Mapi Research Trust

ePROVIDE™ Platform - Clinical Outcome Assessments

FAIR Data

ePROVIDE™ - Available COAs

🧾 Catalog Metadata

Identifier: proqolid
Publisher: Mapi Research Trust
Language: en
Access Rights: restricted
License: scientific use only

📦 Available data

BTHS-SA Adolescent Version - Barth Syndrome Symptom Assessment - Adolescent Version
BTHS-SA Adult version - Barth Syndrome Symptom Assessment - Adult version
BTSQ-P - Being Taken Seriously Questionnaire-Patient version
BTSQ-SO - Being Taken Seriously Questionnaire-Significant Others version
Buchanan and Adix score - Buchanan and Adix score
BUI - Breast Utility Instrument
BULIT - Bulimia Test
BULIT-R - Bulimia Test - Revised
BUPP - Burke Perceptual Profile
bURD - Brief measure of Uncertainty in Rheumatic Disease
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💾 RDF metadata for machines

Download in rdf+xml format